支持间歇性肺部疾病患者的自我管理:数字设备的实用性和可接受性
Malik A Althobiani1, Rebecca Shuttleworth2, John Conway3
1Department of Medicine, University College London, London, United Kingdom.
PLOS digital health
|January 8, 2024
概括
患有间歇性肺部疾病 (ILD) 的患者使用家庭监控设备,但经验各不相同. 虽然有些人发现安慰和控制,其他人经历压力. 建议为最佳使用这些数字健康工具提供量身定制的支持.
科学领域:
- 数字健康技术数字健康技术
- 患者的自我管理.
- 呼吸系统药物 呼吸系统药物
背景情况:
- 间歇性肺部疾病 (ILD) 患者利用数字设备进行健康监测.
- 关于这些设备的范围,选择,使用模式和实用性的理解有限.
- 这项研究旨在量化患者对家庭数字设备的使用和体验,评估其感知到的实用性和采用障碍.
研究的目的:
- 用家用数字健康监测设备量化间歇性肺部疾病 (ILD) 患者的使用和经验.
- 评估这些设备在自我管理中的感知实用性.
- 确定患者在采用和有效使用数字健康监测工具时所面临的障碍.
主要方法:
- 临床医生和患者合作伙伴开发了一个由48个问题组成的横截面电子调查.
- 该调查针对被诊断患有ILD的个人,并经历了为期6个月的验证过程.
- 数据是在2021年9月至2022年12月间匿名收集的,并使用描述性和主题分析进行分析.
主要成果:
- 89名患有肺纤维化,包括异常性肺纤维化 (IPF) 的患者参与了这项研究. 许多人报告严重呼吸困难和并发症.
- 脉冲氧测频繁使用 (49%),其中31%的人每天多次测量和度. 22%的人使用手持螺旋计,解释指南有限.
- 家庭监测为许多人提供了安慰 (46%) 和一种控制感 (40%),但18%的人因读数波动而感到压力. 恶化的呼吸困难和低氧和是寻求帮助的关键触发因素.
结论:
- 患者可以获得数字健康监测设备的技术技能.
- 在ILD患者中,家庭监测的看法各不相同,有些人发现有显著的益处,而另一些人则经历了痛苦.
- 针对性的评估和个性化的支持对于优化在ILD管理中数字健康监测的使用和好处至关重要.
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