同意而不是选择. 关于海外患者决定接受造血干细胞移植的定性研究
Aline Sarradon-Eck1,2, Loreley Franchina1, Yolande Arnault3
1INSERM, IRD, SESSTIM, ISSPAM, Aix Marseille Université, Marseille, France.
Cancer medicine
|January 9, 2024
概括
由于治疗需求和支持系统,患者接受全源造血干细胞移植 (allo-HSCT). 地理距离和恐惧是Alo-HSCT接受的重大障碍.
科学领域:
- 血液学 血液学 血液学
- 移植医学 移植医学
- 患者心理学 患者心理学
背景情况:
- 全源性造血干细胞移植 (allo-HSCT) 是一种拯救生命的手术.
- 了解患者对all-HSCT的决策,特别是对海外患者来说,至关重要.
- 影响alo-HSCT接受的因素,包括距离,需要进一步调查.
研究的目的:
- 确定影响海外患者决定接受全源造血干细胞移植 (allo-HSCT) 的因素.
- 探索患者接受和拒绝allo-HSCT的原因.
- 了解地理距离对分配HSCT决策的影响.
主要方法:
- 定性研究涉及深入的半指导性访谈.
- 采访了22名海外移植患者和24名护理人员/未经同意的患者.
- 在数据分析中采用了感应性的专题方法.
主要成果:
- 关键的接受因素包括治疗局,生存需求,家庭支持,医疗信息,信仰,捐赠者可用性和对移植的积极看法.
- 接受障碍包括地理距离,对隔离的恐惧,死亡率的担忧,以及负面的移植代表.
- 患者的决策受个人价值观,外部压力和对手术的表述的影响.
结论:
- 患者的价值观和感知显著影响alo-HSCT的接受,需要量身定制的信息传递.
- 应对地理距离的挑战以及提供强有力的社会和家庭支持至关重要.
- 缓解患者隔离和增强家庭支持机制对于成功的allo-HSCT旅程至关重要.
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