患有裂口唇的婴儿的发育风险,有或没有裂口,基于护理人员代理报告
Kathleen A Kapp-Simon1,2, Meredith Albert1,2, Todd C Edwards3
1Cleft/Craniofacial Center, Shriners Children's, Chicago, Chicago, IL, USA.
概括
唇裂 (CLP) 的婴儿和男婴的发育风险更高,特别是在沟通和运动技能方面. 定期的发育查对于这些高风险人群的早期干预至关重要.
科学领域:
- 儿科发展 儿科发展
- 头骨面部异常 头骨面部异常
- 发育儿科 发育儿科
背景情况:
- 唇 (CL ± A) 和嘴唇 (CLP) 是常见的先天性异常,影响婴儿发育.
- 早期识别发育风险对于及时干预和改善结果至关重要.
研究的目的:
- 评估照顾者报告的CL ± A和CLP婴儿的发育情况.
- 识别与增加发育风险相关的因素.
- 评估裂唇手术前后发育风险的一致性.
主要方法:
- 展望性,纵向性研究评估了两个时间点的发展:手术前和手术后2个月.
- 在五个发育领域使用年龄和阶段问卷-3 (ASQ-3).
- 包括123名护理人员报告来自三个美国面中心和在线支持小组的婴儿.
主要成果:
- 很大一部分患有CL±A和CLP的婴儿在任何时间点都没有通过所有发育领域 (47%在手术前,42%在手术后).
- 患有CLP的婴儿有更高的沟通和毛细运动延迟的风险.
- 男婴在精细运动和解决问题的领域表现出更高的风险.
结论:
- 护理人员报告显示,高比例的婴儿患有CL ± A和CLP符合发育转诊标准.
- 患有CLP的婴儿和男性婴儿代表了发育风险较高的关键子组.
- 常规的发育查建议婴儿有裂,以促进早期支持.
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