影响患者治疗选择的因素 附加性腺炎患者中的治疗选择
Nicole Salame1, Yacine N Sow2, Meron R Siira1
1Department of Dermatology, Emory University School of Medicine, Atlanta, Georgia.
JAMA dermatology
|January 10, 2024
概括
了解患者对性炎治疗的决策,包括像阿达利姆巴这样的生物药物,是关键. 解决误解和改善疾病理解可以提高治疗参与度,以更好地控制HS.
科学领域:
- 皮肤病学 皮肤病学
- 医疗决策的制定 医疗决策的制定
- 患者体验 患者体验
背景情况:
- 阿达利穆马布已获得FDA批准用于治疗性炎 (HS),但处方率较低.
- 在HS生物治疗的临床指南和实践之间存在差距.
- 了解患者的决策对于改善HS管理至关重要.
研究的目的:
- 为了探索影响医疗决策的因素,对于 hidradenitis suppurativa (HS) 患者.
- 强调生物疗法在HS治疗决策中的作用.
主要方法:
- 使用半结构面试对21名成年HS患者进行定性研究.
- 从埃默里大学医学院的皮肤病诊所招募的参与者.
- 数据收集于2019年11月至2020年3月,分析于2021年12月至2022年8月.
主要成果:
- 关键的决定因素包括痛苦值,风险感知,治疗疲劳和疾病理解.
- 信息来源各不相同,包括皮肤科医生,互联网和个人网络.
- 大多数参与者有中度到重度的HS (Hurley II/III阶段) 和一些先前使用的阿达利穆马布.
结论:
- 解决患者对治疗风险的误解至关重要.
- 提高患者对HS及其进展的了解可以加强治疗选择.
- 强调早期治疗可能会防止痕和疾病的进展,鼓励采用新疗法.
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