活动提供者促进患者和公众参与养老院居民的参与
Kerry Micklewright1, Anne Killett2,3, Gizdem Akdur4
1School of Health Sciences, University of East Anglia, Norwich, UK. k.micklewright@uea.ac.uk.
Research involvement and engagement
|January 10, 2024
概括
养老院居民,包括那些有认知障碍的人,通过活动提供者 (AP) 成功参与了研究. 这种患者和公众参与和参与 (PPIE) 方法产生了有价值的居民观点和改善了养老院实践.
科学领域:
- 老年学是指老年学的学科.
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与和参与 (PPIE)
背景情况:
- 养老院居民经常被排除在研究之外,尽管他们有宝贵的生活经验.
- 在COVID-19期间为英国护理院研究开发了一种新的患者和公众参与和参与 (PPIE) 策略.
- 活动提供者 (AP) 促进了与居民的PPIE会议,弥合了研究人员和参与者之间的差距.
研究的目的:
- 探索支持"内部"PPIE在养老院的可行性,研究人员远程工作.
- 开发和实施PPIE模型,涉及AP作为居民参与的中介机构.
- 评估这种新型PPIE方法的影响和挑战.
主要方法:
- 采用了一个探索性设计,将研究人员与养老院工作人员合作.
- 招募和培训了五名AP,以促进PPIE会议.
- 讨论和活动会议由研究人员和AP共同设计,以适应居民的可访问性.
主要成果:
- 四轮PPIE涉及多达56名居民,包括认知和沟通障碍患者.
- 居民反影响了养老院的做法,并为数据优先级和研究假设提供了独特的见解.
- AP报告了技能发展,并重视了合作伙伴关系,尽管面临时间限制和管理情绪反等挑战.
结论:
- 作为研究合作伙伴,参与活动提供者能够与养老院居民进行包容性和参与性的参与.
- 老年养老院居民的观点,即使是那些有认知或沟通障碍的人,对于有意义的研究至关重要.
- 这种PPIE模型展示了一种有希望的方法,可以在养老院研究中放大居民的声音.
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