青少年和家长对患有慢性疼痛的年轻人数字表型的看法:横截面混合方法调查研究 调查研究
Bridget A Nestor1,2, Justin Chimoff1, Camila Koike1
1Department of Anesthesiology, Critical Care, and Pain Medicine, Boston Children's Hospital, Boston, MA, United States.
Journal of medical Internet research
|January 11, 2024
概括
青少年和家长支持用于慢性疼痛管理的数字表型,有实用驾驶认可. 隐私和数据准确性是年轻人智能手机数据收集的关键问题.
科学领域:
- 数字健康数字健康
- 青少年医学 青少年医学
- 疼痛管理 疼痛管理
背景情况:
- 数字表型化为慢性疼痛管理中的实时数据收集提供了一种新的方法.
- 这种方法可以为患有慢性疼痛的青少年提供个性化和及时的干预.
研究的目的:
- 评估青少年和家长对使用基于智能手机的被动数据收集进行数字表型化的看法.
- 调查青少年慢性疼痛的临床和研究应用的各种数据流的认可,感知效用和担忧.
主要方法:
- 对103名青少年 (平均年龄15.6岁) 和99名患有慢性疼痛的青少年的父母进行了调查.
- 参与者回答了关于9个被动智能手机数据流的问题:加速度计,应用程序,蓝牙,短信/呼叫日志,键盘,麦克风,灯光,屏幕和GPS.
主要成果:
- 数字表型的认可和实用性因数据流而异,一般支持取决于感知到的有用性.
- 加速度计,光,屏幕和GPS被认为是高效益流,而应用程序,蓝牙,短信/通话日志,键盘和麦克风被认为是低效益流.
- 隐私,准确性和数据有效性是青少年和家长的主要关注点,特别是在应用程序和麦克风等数据流方面.
结论:
- 研究结果支持为患有慢性疼痛的青少年量身定制数字表型的实施.
- 这项研究可以为此种人群的评估和干预提供道德和可行的实时症状监测信息.
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