制定法规和资金,为全国健康数据生态系统创建企业架构
Gabriel Seidman1, Ahmad AlKasir1, Kate Ricker1
1Gabriel Seidman and Ahmad AlKasir are with the Ellison Institute of Technology, Los Angeles, CA. Kate Ricker is with Amelia Mayme Consulting, Denver, CO. J. T. Lane is with the Association of State and Territorial Health Officials (ASTHO), Arlington, VA. Anne Zink is with the Alaska Department of Health, Anchorage, and ASTHO. Michelle Williams is with Harvard T. H. Chan School of Public Health, Boston, MA.
American journal of public health
|January 11, 2024
概括
美国缺乏国家健康数据基础设施. 本文提出了联邦指导和激励措施,以创建国家指定实体进行综合健康数据收集和分析.
科学领域:
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
- 卫生政策 卫生政策
背景情况:
- COVID-19大流行暴露了美国国家卫生数据基础设施的关键缺口,特别是对于人口健康管理等二级数据用途.
- 现有的联邦倡议,如CDC的数据现代化倡议和ONC的可信交换框架,旨在改善健康数据生态系统.
- 显著的障碍,包括监管不一致,基础设施碎片化和资金不足,阻碍了联邦和州级之间的有效健康数据交换和整合.
研究的目的:
- 提出制定国家范围健康数据生态系统的战略,能够整合多种数据来源.
- 解决收集,共享和利用公共卫生和二次目的的健康数据的局限性.
- 概述联邦指导和鼓励促进州级数据管理实体的建议.
主要方法:
- 分析性论文方法被用来审查现有的挑战并提出解决方案.
- 专注于涉及联邦指导和鼓励国家指定实体的战略.
- 建议包括监管清算中心,模范立法,为企业架构提供资金和监管沙箱.
主要成果:
- 确定不一致的法规,基础设施和治理是卫生数据交换的主要障碍.
- 强调需要整合健康数据的临床,公共卫生和社会决定因素.
- 建议建立国家指定实体来管理综合健康数据.
结论:
- 发展一个全国性的健康数据生态系统需要联邦领导,一致的指导和财务激励.
- 国家指定实体对于收集,整合和分析各种健康相关数据至关重要.
- 解决基础设施和监管障碍对于改善人口健康管理和公共卫生监督至关重要.
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