患有原发性渐进性多发性硬化症的患者联系他们的专家护士的原因
Rosaline van den Berg1, Katelijn Blok1,2, Nura Tebayna1
1From the Department of Neurology, Multiple Sclerosis Center (RvdB, KB, NT, JdB) and the Science Office (RvdB), Albert Schweitzer Hospital, Dordrecht, the Netherlands.
International journal of MS care
|January 12, 2024
概括
患有初级渐进性多发性硬化症 (PPMS) 的患者经常咨询MS护士关于治疗和膀/肠道问题. 多发性硬化症护士发挥着关键作用,特别是对于那些没有伴侣和男性患者,突出需要更好的治疗和监测.
科学领域:
- 神经学 神经学
- 护理科学 护理科学
- 患者护理 患者护理
背景情况:
- 由患者发起的咨询提供了对患有初级渐进性多发性硬化症 (PPMS) 个体需求的见解.
- 了解患者的问题可以帮助定制PPMS的咨询和治疗策略.
- 多发性硬化症护士是管理PPMS患者复杂护理需求的核心.
研究的目的:
- 分析患有PPMS的患者MS护士咨询的频率,原因和结果.
- 确定与PPMS护理中患者发起的咨询相关的因素.
- 评估MS护士在管理症状和促进PPMS患者转诊方面的作用.
主要方法:
- 在荷兰一家教学医院对98名PPMS患者的回顾性研究 (2007-2021年).
- 收集的数据包括咨询类型,原因 (治疗,排尿/排便等). ) 和转介.
- 负二项回归用于分析影响咨询频率的因素.
主要成果:
- 在720次咨询中,38%是患者发起的.
- 咨询的主要原因:治疗 (36%) 和排尿/排便问题 (31%).
- 没有伴侣的患者和男性患者更频繁地咨询多发性硬化护士.
结论:
- 多发性硬化症护士在PPMS护理中至关重要,特别是在单身人士和男性等弱势群体.
- 关于治疗方法的频繁询问强调了需要先进的治疗选择.
- 和排便问题是很重要的问题,需要在PPMS中进行认真管理和监测.
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