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脑损伤,医学进步和残疾悖论:迈向美国残疾人法案

Joseph J Fins^1,2,3, Kaiulani S Shulman¹, Megan S Wright^1,4

¹Division of Medical Ethics, Weill Cornell Medical College, New York, NY, USA.

NeuroRehabilitation

|January 13, 2024

概括

目前的残疾人法对严重脑损伤的个人提供有限的保护. 新兴的神经科学治疗可能会矛盾地减少法律保护,因为条件变得不那么不变,需要像美国人有能力法案 (AWAA) 这样的新立法.

科学领域:

神经科学是一个神经科学.
医疗法法律医疗法
关于残疾人的法律.

背景情况:

患有中度至重度脑损伤的患者在当前的残疾人法律框架内面临着挑战.
现有的残疾人法为患有不可变的疾病的个人提供了更大的保护.
神经科学和医疗治疗的进步可以改变患者的病情,可能会影响他们的法律保护.

研究的目的:

批判性地检查医学和法律与脑损伤患者交叉的悖论.
提出新的立法,以解决脑损伤患者在恢复能力时不断变化的需求.

主要方法:

批判性地分析现有的残疾人法律和判例.
检查神经科学进步对脑损伤患者的法律保护的影响.
提出一个新的立法框架,美国残疾人法案 (AWAA).

主要成果:

目前的残疾人法律存在局限性,导致严重脑损伤的个体被隔离和边缘化.
具有刺意味的是,通过神经科学治疗取得的进展可能会减少患者的法律保护,因为他们的情况变得更加可变.
这是一个悖论,医学进步虽然有益,但可能会削弱法律保障.

结论:

美国残疾人法案 (ADA) 可能需要增强功能,以充分支持脑损伤患者.
拟议的"有能力的美国人法案" (AWAA) 旨在通过医疗和神经科学进步来维持和培养获得的能力来补充ADA.
需要新的立法来确保对脑损伤患者在恢复能力时的持续支持和保护.

关键词:

有能力的美国人法案.脑损伤是因为脑损伤.有助于生活的住房.关于残疾人的法律.神经伦理学神经伦理学植物状态植物状态

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