"在会议上,每个人都说'健康数据是未来'":关于在临床数据仓库中重新使用EHR数据进行研究的挑战的采访研究
Sonia Priou1, Guillaume Lame1, Marija Jankovic1
1Université Paris-Saclay, CentraleSupélec, Laboratoire Génie Industriel, France.
AMIA ... Annual Symposium proceedings. AMIA Symposium
|January 15, 2024
概括
医院临床数据仓库 (CDW) 提供了创新潜力,但也给研究人员带来了挑战. 解决数据基础设施和整合护理,研究和数据科学是实现CDW利益的关键.
科学领域:
- 医疗信息学 医疗信息学
- 临床数据科学 临床数据科学
- 医疗保健创新 医疗保健创新
背景情况:
- 医院临床数据仓库 (CDW) 越来越多地被采用来访问电子健康记录 (EHR) 数据.
- 对CDW的大量投资表明,医疗保健创新的潜力很大.
- 然而,研究人员面临的挑战阻碍了CDW利益的实现.
研究的目的:
- 调查研究人员与CDW工作时遇到的挑战.
- 了解如何克服这些挑战并提高CDW实用性的方法.
- 收集专家建议,以有效实施和使用CDW.
主要方法:
- 进行了一系列与电子健康记录 (EHR) 数据专家的半结构化采访.
- 分析了采访成绩单,以确定反复出现的主题和挑战.
- 将专家的经验综合成可行的建议.
主要成果:
- 两个主要主题出现了:数据基础设施和数据生成的关键作用,以及整合临床护理,研究和数据科学的困难.
- 专家强调了强大的数据基础的重要性.
- 跨学科合作的挑战是一个重要的发现.
结论:
- 医疗健康工作室对医疗保健创新有希望,但它们的成功取决于应对数据基础设施和整合挑战.
- 从专家经验得出的建议可以指导CDW的有效使用.
- 改善临床实践,研究和数据科学之间的协同作用对于最大限度地提高CDW价值至关重要.
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