在TikTok上自我表达和围绕慢性疾病的分享
Rachael F Zehrung1, Yunan Chen1
1University of California, Irvine, Irvine, CA, USA.
AMIA ... Annual Symposium proceedings. AMIA Symposium
|January 15, 2024
概括
患有慢性疾病的TikTok用户分享经验,以寻找支持和提高认识. 他们面临的挑战包括失去正常和耻辱,使用平台自我表达和社区建设.
科学领域:
- 数字健康数字健康
- 社会媒体研究 社交媒体研究
- 卫生沟通健康沟通
背景情况:
- 之前的研究探索了在线健康社区和健康的一般社交媒体.
- 关于TikTok在健康话语中的作用存在有限的调查,尽管它拥有庞大的用户群.
- TikTok的独特功能使创意表达和广泛的受众范围成为可能.
研究的目的:
- 调查个人在TikTok上分享他们慢性疾病经历的挑战和动机.
- 了解TikTok的平台功能如何影响健康自我表达和社区形成.
主要方法:
- 160个TikTok视频的内容分析,其中包括有关慢性疾病的个人故事.
- 用户生成内容的定性检查,重点关注生活经验.
主要成果:
- 用户报告说,由于慢性疾病而失去正常和耻辱化的斗争.
- 在TikTok上分享经验有助于提高意识,寻求同行支持,并使疾病正常化.
- TikTok的多式联通性质有助于人们对污名化的健康状况进行自我表达.
结论:
- TikTok为患有慢性疾病的个人提供了一个独特的空间来表达自己并与他人联系.
- 调查结果表明,对设计更有效的在线健康社区,特别是对于青少年和年轻成年人,有影响.
- 平台设计可以利用多式联运功能来支持与健康相关的自我披露和社区建设.
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