欧洲儿童瘤中心的息护理服务:一项跨部门调查
Eddy Carolina Pedraza1, Peter Francis Raguindin1, Manya Jerina Hendriks1
1Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
EJC paediatric oncology
|January 15, 2024
概括
超过一半的欧洲中心提供专门的儿科息护理 (PPC),但需求往往超过容量. 解决诸如家长教育和迟到转诊等障碍对于扩大PPC服务,包括丧亲照顾至关重要.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 医疗保健服务研究 医疗保健服务研究
背景情况:
- 息治疗 (PC) 在癌症治疗中至关重要,但其在儿童癌症中的可用性仍未得到充分记录.
- 关于全欧洲儿科瘤患者PC服务的范围和可访问性的数据有限.
研究的目的:
- 评估欧洲儿科瘤中心PC服务的可用性.
- 确定影响儿科息护理 (PPC) 实施和提供障碍物和促进者的障碍.
主要方法:
- 在欧洲各地的儿科瘤中心分发了一份在线问卷.
- 从27个欧洲国家的158个中心收集了有关PPC服务提供的数据.
主要成果:
- 超过一半 (64.6%) 的中心提供专门的PPC,由24/7的多学科团队定义.
- 大多数中心包括多学科团队 (80.9%) 和家庭护理 (69.1%),但38.7%的报告称容量不足.
- 障碍物包括父母的负面看法 (64.7%) 和迟到的转诊 (59.5%);丧亲服务在52.6%的中心可用.
结论:
- 在大多数欧洲儿科瘤机构中,可以获得专门的PPC,许多服务已经建立了十多年.
- 尽管有可用性,但服务能力往往不足以满足患者的需求,这凸显了扩张的需要.
- 解决实施障碍,例如加强家长教育和员工培训,对于满足日益增长的对包括悲伤支持在内的全面PPC需求至关重要.
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