从单一的声音到多样性:在患者参与中重新定义"代表性"
Brett Scholz1, Lucy Kirk1, Terri Warner1
1School of Medicine and Psychology, The Australian National University, Canberra, ACT, Australia.
在制定卫生政策时,消费者代表性至关重要. 将重点转移到多样化,交叉体验可以挑战权力不平衡,并赋予卫生系统的消费者权力.
科学领域:
- 卫生政策 卫生政策
- 消费者参与度 消费者参与度
- 医疗保健服务研究 医疗服务研究
背景情况:
- 越来越重视消费者在卫生政策和服务中的代表性.
- 批评者强调代表性话语如何剥夺消费者的权力.
- 消费者参与COVID-19选政策的制定往往是事后考虑.
研究的目的:
- 评估澳大利亚首都地区COVID-19选原则的发展.
- 探索利益相关者对健康政策中消费者代表性的理解.
- 通过消费者代表来分析权力不平衡是如何复制或挑战的.
主要方法:
- 对利益相关者采访的话语心理分析.
- 专注于消费者,照顾者和社区团体的参与.
- 评估COVID-19分拣原则的发展.
主要成果:
- 参与者讨论了两种方式的消费者代表性:作为普通公众与多样性/交叉性身份.
- 代表普通人群的期望可以使生活经验沉默.
- 传统的权力不平衡可能会被当前的代表性模型重现.
结论:
- 重新思考代表性以包括多样化,交叉边缘化的消费者可以挑战权力不平衡.
- 卫生服务部门应该积极寻求消费者的不同声音.
- 赋予消费者权力需要在政策制定中重视生活经验的专业知识.
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