父母在新生儿重症监护室的息护理决策的经验:一个解释性的现象学分析
Kelly Saint Denny1,2, Kristopher Lamore2, Jean-Louis Nandrino2
1Department of Neonatology, Lille University Hospital, Lille, France.
Acta paediatrica (Oslo, Norway : 1992)
|January 17, 2024
概括
父母在为新生儿做出生命终结决策时,会经历角色矛盾和选择模两可. 这些悖论有助于家长应对,保持身份,并防止后悔在艰难的新生儿重症监护室选择期间.
科学领域:
- 新生儿重症监护室新生儿重症监护室
- 儿科缓和护理是儿童的缓和护理.
- 生物伦理学生物伦理学
背景情况:
- 关于拒绝或取消新生儿维持生命治疗的决定对父母来说是复杂的和情感上具有挑战性的.
- 了解父母的经验对于改善新生儿重症监护病房的支持和伦理实践至关重要.
研究的目的:
- 探索父母面临关于新生儿生命维持治疗的决定的经历和意义创造过程.
- 确定心理机制,帮助家长应对这些深刻的决定.
主要方法:
- 使用音频录制的面对面采访进行定性研究.
- 解释性现象学分析 (IPA) 应用于采访数据.
- 包括来自法国三个新生儿重症监护病房的八个家庭 (七个母亲,五个父亲).
主要成果:
- 识别了父母创造意义的两个关键悖论:角色矛盾和选择模两可.
- 这些悖论,加上减轻不确定性的需要,起到保护心理机制的作用.
- 这些机制有助于父母应对决策,保持父母身份,并防止决策后悔.
结论:
- 角色矛盾和选择模两可是新生儿重症监护病房内家长决策的重要因素.
- 解决这些矛盾的信念对于加强家长支持和专业建议至关重要.
- 这些发现有助于对父母自主权和医生在终身护理方面的不确定性进行伦理讨论.
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