诊断作为一个新的开始,而不是一个结局:参与式的光声研究在成年时导航自闭症诊断
Eilidh Cage1, Monique Botha1, Lynsey McDevitt1
1University of Stirling, UK.
Autism : the international journal of research and practice
|January 17, 2024
概括
寻求自闭症诊断的成年人经常面临挑战. 这项研究强调了改善诊断过程和支持的必要性,强调了倾听自闭症患者和尊重他们的身份的重要性.
科学领域:
- 神经发育障碍 神经发育障碍
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 许多成年人寻求自闭症诊断,报告了积极的生活变化,但面临着困难的诊断经历.
- 积极寻求诊断的个体的观点及其与身份的关系往往被忽视.
研究的目的:
- 探索目前在英国寻求自闭症诊断的成年人的经历.
- 了解诊断过程中的挑战和促进者及其对身份的影响.
主要方法:
- 利用参与式研究方法与六个人寻求诊断作为合作者.
- 采用半结构面试和光声技术来收集深入的经验.
- 进行了协作分析会议,以确定共同的主题.
主要成果:
- 确定了四个关键主题:诊断前的危机,意识到自闭症身份时的感觉,导致判断的有缺陷的诊断过程,以及诊断后的支持不足.
- 认识到需要改进与自闭症患者合作开发的诊断标准和流程.
- 强调需要更大的临床医生同情心和灵活的诊断服务,尊重神经分歧和身份.
结论:
- 英国目前的自闭症诊断过程对于寻求诊断的成年人来说是不够的.
- 政策和实践变化至关重要,以改善诊断的可访问性,临床医生的理解和诊断后的支持.
- 集中自闭症个体的声音和经验对于有效的诊断改革至关重要.
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