使用传感器远程评估儿科健康行为的伦理考虑
Alexandra M Psihogios1, Sara King-Dowling2, Jonathan A Mitchell2
1Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University.
The American psychologist
|January 18, 2024
概括
研究人员必须解决基于传感器的健康研究中的人类因素,以确保道德数据收集和保护儿童. 忽视主观决策可能会破坏儿童保健健康传感器的好处.
科学领域:
- 数字健康数字健康
- 生物医学工程 生物医学工程
- 临床研究伦理学
背景情况:
- 像加速度计和粘附监测器这样的传感器通过实现实时行为采样来彻底改变健康数据收集.
- 虽然技术能力得到了充分的研究,但传感器实施中的人类因素和伦理考虑往往被忽视.
- 儿童群体非常适合数字健康,但在技术方面具有独特的脆弱性和偏好.
研究的目的:
- 检查基于传感器的健康数据收集中人类决策的伦理影响,特别是在儿科研究中.
- 为解决与实施健康传感器相关的实际困境和伦理问题提供指导.
- 使用贝尔蒙特原则组织道德考虑:尊重人,慈善和正义.
主要方法:
- 在使用传感器的儿科睡眠,体力活动和药物坚持研究中分析伦理考虑.
- 将贝尔蒙特原则 (尊重人,公益,正义) 应用于传感器的实施.
- 在传感器数据收集和管理中识别主观决策点.
主要成果:
- 传感器数据可以优先考虑青少年和家庭的生活经历,引发人们对尊重人的担忧.
- 在传感器数据管理,共享,访问和可接受性方面出现了道德困境,特别是在少数儿科群体中.
- 在传感器数据管理中,主观决策过程的透明度至关重要.
结论:
- 为了减轻伦理风险,在传感器研究中更加关注人类因素是必不可少的.
- 积极解决道德问题可以帮助实现健康传感器在改善儿童健康方面的全部潜力.
- 伦理实施需要平衡技术进步与参与者的主观经验和权利,特别是儿童.
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