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"即使是我丈夫也不知道我患有这种[乳腺癌]":幸存者在获取,导航和应对治疗方面的经历
Runcie C W Chidebe1,2,3, Tochukwu C Orjiakor4,5,6,7, Gloria C Okwu4
1Project PINK BLUE-Health & Psychological Trust Centre, Abuja, Nigeria. runcie.chidebe@projectpinkblue.org.
尼日利亚乳腺癌幸存者在治疗期间经常感到孤立,依靠精神信仰来应对情绪负担. 改善支持性护理和患者参与对于更好的生存结果至关重要.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 定性研究是指质量研究.
背景情况:
- 尼日利亚面临着非洲乳腺癌负担最高的情况,与高收入国家 (>90%) 相比,其生存率明显较低 (40%).
- 现有的研究强调了健康系统和个人因素导致乳腺癌的不良结果,但幸存者的经历仍然未得到充分记录.
研究的目的:
- 探索尼日利亚乳腺癌幸存者的各种经验,包括治疗准入,导航和应对机制.
- 在幸存者的旅程中确定融合的主题,以告知支持性护理策略.
主要方法:
- 与24名乳腺癌幸存者 (年龄在35-73岁之间) 进行了焦点小组讨论.
- 诱导性主题分析应用于讨论的字面转录.
主要成果:
- 四个主要主题出现了:社会孤立 ('我独自携带这个[乳腺癌]'),性 ('生活我的生活'),精神应对 ('上帝帮助了我') 和经历的艰难性质 ('非常痛苦的旅程').
- 幸存者经常隐他们的诊断,并在接受治疗时利用精神信仰作为应对机制.
结论:
- 乳腺癌的诊断和治疗给人带来了巨大的情感负担,但幸存者表现出寻找意义的能力.
- 整合支持性护理,创新的访问工具和患者参与共享决策对于改善尼日利亚乳腺癌幸存率至关重要.
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