斯里兰卡农村皮肤莱什曼病的心理社会负担:多方法定性研究
Hasara Nuwangi1, Lisa Dikomitis2, Kosala Gayan Weerakoon3
1Department of Community Medicine, Faculty of Medicine and Allied Sciences, Rajarata University of Sri Lanka.
PLoS neglected tropical diseases
|January 18, 2024
概括
皮肤莱什曼病 (CL) 在斯里兰卡造成了严重的心理社会负担,通过伤口,治疗和疾病经历影响日常生活. 解决这种负担是有效控制疾病和以患者为中心的护理的关键.
科学领域:
- 医学人类学 医学人类学
- 公共卫生 公共卫生
- 热带医学 热带医学
背景情况:
- 莱什曼病,特别是皮肤莱什曼病 (CL),在斯里兰卡流行,不成比例地影响贫困地区.
- 结核病是一种毁容和污名化的疾病,需要更深入地了解其超越临床指标的心理社会影响.
- 现有的研究缺乏对CL心理社会负担的整体观点,阻碍了以人为中心的护理策略的发展.
研究的目的:
- 探索斯里兰卡农村地区皮肤莱什曼病的多面心理社会负担.
- 确定与疾病对个人生活和社会观念的影响相关的关键主题.
- 为开发以人为中心的医疗保健模式提供信息,以改善患者的治疗结果和疾病管理.
主要方法:
- 采用了复杂的多方法定性方法,整合了社区参与.
- 数据收集包括参与者观察,社区研究人员的自动民族日记研究和参与者体验反射期刊 (PERJ) 研究.
- 专题分析用于分析受CL影响的社区成员的定性数据.
主要成果:
- 出现了三个主要主题:与伤口相关的负担 (恐惧,厌恶,身体形象,社会耻辱),与治疗相关的负担 (日常干扰,疼痛,时间,无效性,诊所访问) 和疾病经验负担 (焦虑,负面情绪).
- 心理社会因素对寻求医疗保健的行为,治疗坚持和整体疾病控制努力有重大影响.
- 这项研究强调了CL对患者心理健康和社会融入的深远影响.
结论:
- 解决CL复杂的心理社会负担对于有效寻求医疗保健,遵守治疗和预防疾病至关重要.
- 提出了一个以人为中心的医疗保健模式,以更好地了解CL的上下文性质,并提高患者的治疗结果.
- 将心理社会支持纳入CL管理战略对于改善受影响个体的生活质量至关重要.
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