在法国严重严重的智力和多重残疾人中,医疗保健管理的充分性:一项纵向研究
Karine Baumstarck1,2, Ilyes Hamouda3,4, Marie-Anastasie Aim5
1EA 3279, CEReSS - Research Centre On Health Services and Quality of Life, Aix Marseille University, 27 Boulevard Jean-Moulin, 13385, Marseille, France. karine.baumstarck@univ-amu.fr.
BMC health services research
|January 18, 2024
概括
法国对深度智力和多重残疾 (PIMD) 患者的护理环境往往是不够的. 这项研究突出了医疗和准医疗护理的重大差距,需要改善护理组织以获得更好的患者结果.
科学领域:
- 医疗保健管理的管理
- 关于残疾人的研究.
- 公共卫生 公共卫生
背景情况:
- 对于深度智力和多重残疾 (PIMD) 患者的护理组织在全球范围内有所不同.
- 在五年内研究了一大批患有严重PIMD/多重残疾的法国人.
- 该研究评估了护理设置的充分性和医疗保健消费.
研究的目的:
- 评估法国严重PIMD/多重残疾人护理环境的充分性.
- 评估这一群体的医疗保健消费模式.
- 确定在护理管理中需要改进的领域.
主要方法:
- 法国EVAL PoLyHandicap (EVAL-PLH) 队列的纵向研究.
- 两次评估浪潮 (2015-2016年和2020-2021年) 包括3岁以上的早期脑损伤和严重PIMD的个体.
- 用客观指标 (年龄,严重程度) 和主观指标 (医生的看法) 来衡量护理设置的充分性;医疗保健消费包括医疗和准医疗服务.
主要成果:
- 在两个评估时间,超过45%的个人在不适合年龄和严重程度的护理环境中.
- 在医疗和教育护理方面的主观不足影响了7% (T1) 和13% (T2) 的个人.
- 大多数人没有得到足够的医疗监测,在处方和交付的准医疗护理课程之间存在显著的差距.
结论:
- 该研究确定了法国严重PIMD/多重残疾人的护理管理中的关键问题.
- 医疗保健提供者,护理人员和政策制定者必须合作,以优化护理组织.
- 需要进行改进,以提高这一群体的整体护理管理和福祉.
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