亨廷顿病患者对息护理的看法:一种定性研究
B Heffernan1, E Forbes1, L Seeberger1
1University of Colorado, 1635 Aurora Ct, Aurora, CO, 80045, USA.
Parkinsonism & related disorders
|January 19, 2024
概括
亨廷顿症患者希望获得息治疗.
科学领域:
- 神经退行性疾病 神经退行性疾病
- 抚慰性护理是一种缓解性护理.
- 生活质量生活的质量.
背景情况:
- 亨廷顿病 (HD) 是一种进展性神经退行性疾病,没有修改疾病的治疗方法.
- 息治疗旨在通过解决症状和心理社会问题来提高患者和家庭的生活质量.
- 在亨廷顿病管理中实施息护理需要进一步了解.
研究的目的:
- 探索亨廷顿病患者及其护理人员对息护理的看法.
- 在亨廷顿病患者群体中确定特定的息护理需求.
- 确定整合息护理服务的最佳时间.
主要方法:
- 与被诊断患有亨廷顿病的患者及其自我认定的护理人员进行了半结构面试.
- 从一个大型学术机构招募了参与者.
- 采访探讨了诊断,疾病管理,生活质量和改善领域的经验.
主要成果:
- 确定的主题包括需要以患者和护理人员为中心的治疗和现有的护理差距.
- 参与者表达了对息护理整合的开放和愿望.
- 研究了对息护理干预的首选时间的理解.
结论:
- 亨廷顿病患者及其护理人员优先考虑症状管理,社会资源,先进的护理计划和精神福祉.
- 启动息护理的首选时间是在症状出现时.
- 息护理整合可以显著改善受亨廷顿病影响者的生活质量.
相关概念视频
Continuing Care
1.5K
Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.5K
Documentation in Long-Term and Home Healthcare Setting
892
Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
Long-Term Care Facilities
892
Nursing Ethical Principles II
980
Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
980
Ethical Issues
968
Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
Ethical Concerns in Healthcare:
968
Taste Buds and Receptors
2.0K
Gustation, or the sense of taste, is intrinsically linked to the anatomical structures located on the tongue. This organ's surface, along with the entirety of the oral cavity, is adorned with stratified squamous epithelium. Evident on the tongue are elevated structures known as papillae (singular = papilla), which house the mechanisms for the transduction of gustatory stimuli. Four distinct types of papillae exist, each identified by their unique morphological attributes: the circumvallate,...
2.0K
Ethical Dilemmas II
1.1K
Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
1.1K


