该CDH研究小组:过去,现在和未来
Kylie I Holden1,2, Ashley H Ebanks1,2, Kevin P Lally1,2
1Department of Pediatric Surgery, McGovern Medical School at the University of Texas Health Science Center and Children's Memorial Hermann Hospital, Houston, Texas, United States.
概括
生产腹膜研究小组 (CDHSG) 登记处收集了全球超过14,000名儿童的数据. 这项国际合作促进了对先天性隔膜 (CDH) 患者护理的基于证据的研究.
科学领域:
- 儿科手术 儿科手术
- 临床研究 临床研究
- 罕见疾病流行病学 罕见疾病流行病学
背景情况:
- 生产腹膜研究小组 (CDHSG) 是一个国际联盟,成立于1995年.
- 它的重点是收集和汇总来自参与机构管理的活产先天性隔膜 (CDH) 患者的数据.
- 该倡议旨在创建一个全面的临床调查和结果跟踪注册表.
结论:
- 像CDHSG这样的国际多中心联盟对于促进罕见疾病的理解和管理至关重要.
- CDHSG注册提供了一个强大的平台,用于生成证据,以改善先天性隔膜患者的治疗结果.
- 未来的方向将集中在持续的数据收集和研究,以解决CDH.
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