日间嗜睡和诊断仪器的生活经验之间的匹配和不匹配:在患有睡眠障碍的患者中进行的定性研究
Vaida T R Verhoef1, Karin C H J Smolders1, Lysanne Remmelswaal1
1Human-Technology Interaction, Department of Industrial Engineering and Innovation Sciences, Eindhoven University of Technology, P.O. Box 513, 5600 MB Eindhoven, The Netherlands.
Clocks & sleep
|January 22, 2024
概括
患者使用各种术语和隐喻来描述白天的嗜睡,通常与标准监测工具不一致. 了解这些丰富的描述是有效解决睡眠障碍的关键.
科学领域:
- 神经学 神经学
- 睡眠医学 睡眠医学
- 心理学 心理学 心理学
背景情况:
- 过度白天嗜睡 (EDS) 是睡眠障碍的一个普遍但不太了解的症状.
- 定义和检测EDS的挑战源于概念上的模糊性,并与疲劳重叠.
- 现有的监测工具可能无法完全捕捉患者的睡眠体验.
研究的目的:
- 探索患者对与睡眠障碍相关的白天投诉的主观描述和现象学.
- 为了研究患者用来表达他们对嗜睡的经历的语言和丰富性.
- 将患者描述与当前的概念化和对嗜睡的监测工具进行比较.
主要方法:
- 对被诊断患有阻塞性睡眠呼吸暂停 (N=15) 和麻醉症 (N=5) 的患者进行了半导向采访.
- 利用参与者自己的术语来描述白天的投诉及其时间方面.
- 专题分析转录的采访,使用精选的编码系统来识别关键主题.
主要成果:
- 患者使用可互换的术语 (例如,疲,昏昏欲睡,疲,筋疲力尽) 来描述他们的抱怨.
- 描述得到了丰富的大小索引,对抗清醒状态,和时间波动.
- 隐喻经常被用来表达嗜睡的主观体验.
- 患者的体验往往不同于标准的自我报告的睡眠度量.
结论:
- 患者对白天嗜睡的描述是复杂和多方面的,包含独特的语言元素.
- 当前的概念化和监测工具可能无法完全涵盖睡眠的体验.
- 对白天病情的临床评估应考虑更广泛的患者报告的因素,包括波动和对比状态.
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