一种缓解护理方法对肌缩侧面硬化症
Cláudio Gouveia1, Licínia Araújo2, Susete Freitas2
1Internal Medicine, Centro Hospitalar Lisboa Ocidental, Lisbon, PRT.
Cureus
|January 24, 2024
概括
马德拉岛的肌缩侧面硬化症 (ALS) 患者的息护理转诊往往会延迟,大多数患者患有晚期疾病和无法控制的症状. 早期整合息治疗对于ALS患者的症状管理和生活质量至关重要.
科学领域:
- 神经学 神经学
- 抚慰性医学是一种缓解性医学.
- 公共卫生 公共卫生
背景情况:
- 肌缩侧面硬化症 (ALS) 是一种进展性神经退行性疾病,影响运动功能.
- 目前的ALS治疗侧重于症状控制和生活质量,强调了息治疗的重要作用.
- 有限的治疗选择需要强烈强调对ALS患者的息性支持.
研究的目的:
- 描述在马德拉岛 (Madeira Island) 的息治疗单位转诊或接诊的肌缩侧面硬化症 (ALS) 患者的情况.
- 在五年内 (2017-2021) 分析转诊模式,症状负担和干预措施.
主要方法:
- 一项回顾性,描述性和观察性研究分析了ALS患者的电子和物理病历.
- 数据涵盖了为期五年的 (2017-2021) 患者转移到息治疗.
- 使用微软Excel和SPSS (28.0.1版本) 进行了统计分析.
主要成果:
- 在38名确诊的ALS患者中,有23人 (60.53%) 被转诊治疗,其中有20人 (50.63%) 被积极跟踪.
- 平均预期寿命为425天,其中137天在息治疗中度过. 转诊发生在诊断后的中位数为167天,主要来自家庭医学,因为症状无法控制.
- 常见的症状包括消化不良,呼吸不良和疼痛. 在55%的患者中存在高级护理指令,95%的死亡发生在息治疗单位内.
结论:
- 尽管有文献支持ALS早期息护理整合,但这项研究揭示了晚期转诊和晚期疾病呈现.
- 这些发现强调了马德拉岛对ALS患者的缓和护理的推实践和实际实施之间的差距.
- 及时整合息护理对于优化ALS症状管理和生活质量至关重要.
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