发育协调障碍的诊断服务:家长发现的差距和机会
Erin S Klein1,2, Melissa Licari3, Skye Barbic4
1Graduate Programs in Rehabilitation Sciences, University of British Columbia, Vancouver, Canada.
Child: care, health and development
|January 24, 2024
概括
患有发育协调障碍 (DCD) 的孩子的父母面临着由于认识不足和长时间的等待列表而无法及时诊断的挑战. 早期识别和干预需要以家庭为中心,公共资助的方法.
科学领域:
- 神经发育障碍 神经发育障碍
- 儿童运动技能的发展.
背景情况:
- 发育协调障碍 (DCD) 影响20分之一的儿童,影响运动技能的获得.
- DCD通常是未被认可和未被诊断的,导致家庭压力.
- 了解父母在获取DCD诊断服务方面的经验至关重要.
研究的目的:
- 调查父母如何获得DCD的诊断服务.
- 收集家长关于早期识别和诊断DCD所需支持的观点.
主要方法:
- 在不列颠哥伦比亚省向父母分发了一份在线问卷 (impACT for DCD).
- 来自237名受访者的数据被描述性地分析.
- 通过探索性内容分析分析了开放式问题.
主要成果:
- 父母报告显示,医疗保健专业人员和教育工作者对DCD的原因,症状和影响的认识很低.
- 意识有限和长时间的等待列表阻碍了及时获得诊断服务.
- 有经济资源的家庭通常会因为延误而选择私人评估.
结论:
- 标准化的护理途径对于简化DCD诊断和早期干预至关重要.
- 一个公共资助的,以家庭为中心的,协作照顾模式对于评估,诊断和治疗患有DCD的儿童至关重要.
- 早期解决DDC可以减轻相关的身体和心理健康问题.
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