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改变思维方式 - - 青少年和年轻成年人转型性风湿病学
Emily Willis1, Janet E McDonagh2
1Department of Paediatric and Adolescent Rheumatology, Royal Manchester Children's Hospital, Manchester University Hospitals NHS Trust, Manchester, UK.
The Lancet. Rheumatology
|January 25, 2024
概括
改善患有慢性疾病的年轻成年人的过渡护理需要解决复杂的卫生系统,并专注于超越转移到成人服务之外的适合发展的护理. 这提高了长期的健康结果.
科学领域:
- 儿科风湿病学 儿科风湿病学
- 青少年医学 青少年医学
- 医疗保健系统 医疗保健系统
背景情况:
- 尽管有几十年的认可,但对患有慢性疾病的青少年和年轻成年人进行过渡性护理的普遍实施仍然难以捉摸.
- 在定义最佳实践方面取得了进展,但将研究转化为临床实践存在持续的挑战.
- 神经科学强调了青少年时期的关键大脑发育,需要注意转移后的护理阶段.
研究的目的:
- 强调需要继续关注青少年和年轻人的健康过渡的转移后阶段.
- 倡导儿科和成人类风湿病学从业者,其他学科和机构之间的协作努力.
- 促进向适合发展的医疗保健转变,超越仅仅关注健康转型.
主要方法:
- 审查现有的文献和临床实践指南关于过渡期护理.
- 在复杂的医疗保健系统中将研究转化为实践所面临的挑战的分析.
- 考虑与青少年大脑发育有关的神经科学发现.
主要成果:
- 在实现普遍实施过渡期护理方面,仍然存在重大挑战.
- 跨学科和专业的合作对于开发响应性类风湿病学服务至关重要.
- 转移到成人服务并不是终点;持续的护理和参与至关重要.
结论:
- 转向发展适合的医疗保健的范式转变对于改善在这个脆弱的生活阶段的护理至关重要.
- 加强对转移后阶段的关注和跨学科的合作可以改善患者的参与度和长期健康结果.
- 需要有响应性的医疗保健系统来满足患有慢性疾病的青少年和年轻成年人的独特需求.
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