澳大利亚痴呆症网络 (ADNeT) 倡议数据管理的信息平台
Julie Trinder1, Pierrick Bourgeat1, Ying Xia1
1Australian e-Health Research Centre, CSIRO, Australia.
Studies in health technology and informatics
|January 25, 2024
概括
这项研究引入了一个新的信息平台,以帮助阿尔茨海默病的研究. 它有助于识别有风险的个体,并将其与临床试验联系起来,减轻社区负担.
科学领域:
- 神经科学是一个神经科学.
- 医疗信息学 医疗信息学
- 公共卫生 公共卫生
背景情况:
- 阿尔茨海默病和相关痴呆症的患病率不断增加,给社区健康带来了重大挑战.
- 现有的研究和临床试验招聘流程需要优化效率和数据管理.
- 需要强大的系统来管理多个研究站点的敏感患者数据是至关重要的.
研究的目的:
- 为ADNeT查和试验计划开发和实施一个安全的模块化信息技术平台.
- 促进识别患痴呆症高风险的个人.
- 简化指导风险人群参加适当临床试验的流程.
主要方法:
- 使用私有云技术开发一个模块化信息平台.
- 操作和研究数据的安全管理.
- 在六个临床试验场所部署.
主要成果:
- 成功实施一个安全的,基于私有云的信息平台.
- 集中管理来自六个临床站点的数据.
- 奠定了改善参与者识别和试验招聘的基础.
结论:
- 开发的信息平台有效地支持ADNeT倡议的目标.
- 通过私有云解决方案,可以实现跨多个站点的安全数据管理.
- 该系统增强了改善阿尔茨海默病研究成果和参与临床试验的潜力.
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