一个基于网络的心理支持计划,用于罕见慢性疾病儿童的照顾者:一个随机对照试验
Dunja Tutus1, Mandy Niemitz2, Paul L Plener2,3
1Department of Child and Adolescent Psychiatry/Psychotherapy, Ulm University, Steinhoevelstr, 5, 89075, Ulm, Germany. dunja.tutus@uniklinik-ulm.de.
Orphanet journal of rare diseases
|January 27, 2024
概括
一个基于网络的心理支持计划 (WEP-CARE) 有效地减少了患有罕见疾病的孩子的父母的焦虑和抑郁. 对焦虑,恐惧的进展和应对的积极影响持续了六个月.
科学领域:
- 儿科心理学 儿科心理学
- 罕见疾病护理 罕见疾病护理
- 数字健康干预措施 数字健康干预措施
背景情况:
- 童年发病的罕见疾病影响了50%的病例,给照顾者带来了严重的心理痛苦.
- 患有罕见疾病的儿童的照顾者面临着有限的专业心理支持.
- 该WEP-CARE计划是为了解决这些照顾者的未满足的心理需求而开发的.
研究的目的:
- 评估基于网络的心理支持计划 (WEP-CARE) 对罕见疾病儿童的护理人员的有效性.
- 评估该计划对父母焦虑,对疾病进展的恐惧,抑郁和应对机制的影响.
- 为了确定治疗收益和用户满意度的长期可持续性.
主要方法:
- 一项随机对照试验,涉及德语系父母的儿童 (0-25岁) 患有罕见疾病和焦虑症状.
- 参与者被分配到通常的WEP-CARE干预或治疗中.
- 主要结局:家长焦虑 (GAD-7);次要结局:对进展的恐惧,抑郁,应对,生活质量和用户满意度.
主要成果:
- 与对照组相比,WEP-CARE组在焦虑,对疾病进展的恐惧,抑郁和应对方面显著改善.
- 对焦虑,恐惧的进展和应对的治疗收益在6个月的随访中得到维持.
- 没有观察到对生活质量有显著的相互作用效应.
结论:
- 该项目WEP-CARE在减少罕见疾病儿童的家长的心理痛苦方面表现出有效性.
- 基于网络的格式被证明是可行的,并被父母和治疗师都接受.
- WEP-CARE为这个弱势群体提供了有价值和可访问的支持解决方案.
关键词:
基于互联网的认知行为疗法 (iCBT)家长的心理压力是心理压力.随机对照试验 (RCT) 是一种随机对照试验.儿童和青少年时期的罕见慢性疾病.网络为患有罕见慢性疾病的儿童的照顾者提供心理支持计划 (WEP-CARE).更多相关视频
08:25Polar Histogram Visualization of Acute Stress Disorder Scale Scores for Comprehensive Clinical Assessment
Published on: December 6, 2024
367
08:54Randomized, Triple-Blind, and Parallel-Controlled Trial of Transcranial Direct Current Stimulation for Cognitive Rehabilitation after Stroke
Published on: June 6, 2025
253
相关概念视频
01:16Clinical Trials
Clinical trials are prospective experimental studies conducted on humans to determine the safety and efficacy of treatments, drugs, diet methods, and medical devices. Using statistics in clinical trials enables researchers to derive reasonable and accurate conclusions from the collected data, allowing them to make wise decisions in uncertain situations. In medical research, statistical methods are crucial for preventing errors and bias.
There are four phases in a clinical trial. A phase one...
There are four phases in a clinical trial. A phase one...
01:11Clinical Trials: Overview
Clinical development focuses on how the drug will interact with the human body and encompasses four key phases of clinical trials, each serving a specific purpose in assessing the safety and effectiveness of new drugs. These phases overlap and build upon one another. Phase I involves a small group of healthy volunteers (typically 20-80 individuals) or, in cases where significant toxicity is expected, patients with the targeted disease, such as cancer or AIDS. The volunteers are tested for...
01:24Treatment Strategies for Psychological Disorders
Treatment approaches for psychological disorders fall into three main categories: psychological, biological, and sociocultural. Each approach targets different aspects of mental health, requiring varying levels of education and training.
Psychological therapies focus on modifying emotions, thoughts, and behaviors through talking, interpreting, listening, rewarding, challenging, and modeling. Clinical psychologists, counselors, and social workers commonly practice psychotherapy. Clinical...
Psychological therapies focus on modifying emotions, thoughts, and behaviors through talking, interpreting, listening, rewarding, challenging, and modeling. Clinical psychologists, counselors, and social workers commonly practice psychotherapy. Clinical...