对家长咨询小组进行四年评估,以支持儿童健康知识翻译的研究计划
Lisa Hartling1, Sarah A Elliott1, Annie Mabbott2
1Department of Pediatrics, Faculty of Medicine and Dentistry, University of Alberta, Edmonton, AB, Canada.
Research involvement and engagement
|January 28, 2024
概括
建立一个儿科家长咨询小组改善了儿童疾病的研究工具. 定期评估和响应变化促进了有意义的患者参与和在四年内做出有价值的贡献.
科学领域:
- 患者和社区参与健康研究
- 知识翻译和实施科学科学
- 儿科健康研究方法 儿科健康研究方法
背景情况:
- 2016年成立了一个儿科家长咨询小组,指导针对急性儿童疾病的创新知识翻译 (KT) 工具的研究.
- 采用混合方法策略,评估母团成员在四年时间内的经验.
研究的目的:
- 介绍2018年至2021年咨询小组的家长评估结果.
- 讨论多年来与家长咨询小组合作的经验.
主要方法:
- 利用年终调查和与小组成员的采访来评估对经验的看法,小组管理和研究人员的互动.
- 应用混合方法方法,分析定量 (描述性统计) 和定性 (内容分析,主题分析) 数据.
- 从2018年到2021年收集的数据.
主要成果:
- 评估回应通常是积极的,随着时间的推移而得到改善,导致集团管理,沟通和反机制的运营变化.
- 定性主题强调了团队运作的重要性,对管理的满意度,以及需要改进的领域,包括对更大的多样性的渴望.
- 家长们表达了对理解研究活动对更广泛的医疗保健系统影响的兴趣.
结论:
- 建立和管理家长咨询小组为患者参与和维持这些小组在健康研究中提供了有价值的见解.
- 有意识的,反复的方法,包括定期评估和响应性变化,对于促进有意义的参与至关重要.
- 维持该集团需要大量的资源,但它为研究计划和成果提供了实质性的贡献.
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