描述自闭症年轻成年人在高中毕业一年后的结果
Gael I Orsmond1, Sharada G Krishnan2, Elizabeth G S Munsell3
1Department of Occupational Therapy, Boston University, 635 Commonwealth Ave, Boston, MA, 02215, USA. gorsmond@bu.edu.
Journal of autism and developmental disorders
|January 29, 2024
概括
这项研究表明,量身定制的结果措施显示了自闭症年轻人在教育,社会联系和独立方面取得的积极成果. 神经多样性方法提供了一个更乐观的看法自闭症成年人的结果.
科学领域:
- 神经发育障碍 神经发育障碍
- 自闭症谱系障碍 (ASD) 研究研究
- 年轻成年人的结果.
背景情况:
- 以前的研究表明,自闭症成年人在就业,独立生活和社会关系方面表现不佳.
- 由于先前研究的测量和样本的局限性,可能会高估负面结果.
- 需要反映年轻成年和自闭症个体观点的结果措施.
研究的目的:
- 开发和描述一种用于自闭症年轻成年人结果的新型测量方法.
- 为了全面评估,将客观指标与主观满意度指标配对.
- 为了在年轻成年人的特定背景下,从自闭症个体的角度捕捉结果.
主要方法:
- 36名自闭症年轻人和一位家长完成了自我报告调查.
- 在三个领域定义了客观和主观 (满意度) 的结果指标:生产力,社会福祉和生活状况.
- 数据收集的重点是就业/教育,朋友接触频率和日常生活自主性.
主要成果:
- 四分之三的自闭症年轻人报告至少有6个积极结果中的5个.
- 超过90%的人参与了教育,工作或过渡计划,并对这种生产力感到满意.
- 超过75%的人有足够的朋友联系,对他们的社交生活感到满意;大多数人报告中度的自主权,对他们的生活状况感到满意.
结论:
- 针对自闭症年轻成年人的量身定制的结果测量结果比以前的文献更为乐观.
- 开发的方法与神经多样性框架保持一致.
- 这种方法对于评估自闭症患者的过渡服务和干预措施可能是有价值的.
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