患者,家长和护理人员的观点围绕着加快的儿科手术
Omar Salim1, Aswin Chari2, Ido Ben Zvi3
1School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, UK.
Epilepsy research
|January 29, 2024
概括
大多数患有抗药性的儿童都愿意接受加速手术. 患者的优先事项包括发作自由和生活质量,支持更快治疗的试验.
科学领域:
- 神经学 神经学
- 儿科症 儿科症
- 手术干预 手术干预
背景情况:
- 许多患有可见MRI病变的儿科患者对抗发作药物有抗性.
- 药物耐药性,往往晚诊断,是手术候选人的常见要求.
- 在诊断时加快手术转诊可能会改善控制,认知功能和发育结果.
研究的目的:
- 探索患者,家长和护理人员对手术的看法.
- 了解儿科的治疗优先事项.
- 为了衡量愿意参加提议的加速手术试验的意愿.
主要方法:
- 电子调查分发给205名患者,家长和照顾者 (英国和北美).
- 通过社交媒体,慈善机构和社会招聘.
- 对分类和自由文本答案的分析,用皮尔森的千平方测试来检测子组差异.
主要成果:
- 近90%的先前手术患者报告说,发作停止或减少.
- 术后结果的首要优先级是发作自由 (66%),生活质量 (47%) 和发作严重程度 (30%).
- 65%的人支持加快手术,51%的人会参加试验,但37%的人由于对神经外科手术的担忧而犹不决.
结论:
- 患者,家长和护理人员愿意为病变性而进行加速手术,并支持临床试验.
- 治疗优先级,包括控制,生活质量和神经心理结果,在各个子组中一致.
- 以患者和护理人员为中心的试验设计对于提高可行性,满意度和参与者利益至关重要.
相关概念视频
01:30Psychosurgery
56
Psychosurgery, the surgical alteration or permanent removal of brain tissue to alleviate severe psychological conditions, stands as one of the most radical and controversial treatments in the history of mental health care. Its development and application have evolved significantly, marked by dramatic shifts in scientific understanding and ethical perspectives.
Historical Development of Psychosurgery
In the 1930s, Portuguese neurologist Antonio Egas Moniz introduced a surgical procedure designed...
Historical Development of Psychosurgery
In the 1930s, Portuguese neurologist Antonio Egas Moniz introduced a surgical procedure designed...
56
01:26Endoscopic Procedures IV: Sigmoidoscopy and Laproscopy
88
Sigmoidoscopy and laparoscopy are distinct medical procedures that enable physicians to internally inspect different parts of the GI tract. Although they serve different purposes, each is essential for diagnosing and, in some cases, treating various medical conditions.
Sigmoidoscopy
Sigmoidoscopy is a diagnostic procedure that uses a flexible sigmoidoscope equipped with a light source and camera to examine the rectum and sigmoid colon. The procedure involves inserting the tube through the anus...
Sigmoidoscopy
Sigmoidoscopy is a diagnostic procedure that uses a flexible sigmoidoscope equipped with a light source and camera to examine the rectum and sigmoid colon. The procedure involves inserting the tube through the anus...
88