关于ME/CFS患者如何使用互联网的范围审查的协议
Diane Louise Shortland1, Qulsom Fazil2, Nutmeg Hallett3
1Institute of Applied Health Research, School of Medicine and Dentistry, University of Birmingham Edgbaston Campus, Spalding, UK DLS760@student.bham.ac.uk.
BMJ open
|January 29, 2024
概括
本范围审查调查了患有肌痛性脑筋炎 (ME),也称为慢性疲劳综合征 (CFS) 的个体的互联网使用情况. 了解在线活动对于这个患者群体来说至关重要,以改善他们的日常生活.
科学领域:
- 神经学 神经学
- 免疫学 免疫学 免疫学
- 医疗信息学 医疗信息学
背景情况:
- 肌痛性脑筋炎 (ME) 或慢性疲劳综合征 (CFS) 是一种复杂的神经疾病,影响多个身体系统.
- 关键症状包括严重的疲劳,运动后的不适,认知功能障碍和睡眠障碍.
- 与其他患者群体相比,患有ME/CFS的患者在线活动较高,因此需要对其互联网使用模式进行研究.
研究的目的:
- 进行范围审查,以了解ME/CFS患者在线使用的特点和经验.
- 探索互联网使用如何融入ME/CFS患者的日常生活.
- 为了深入了解这个研究不足的现象.
主要方法:
- 该审查采用了阿克西和奥马利框架,由Levac等人指导. 和乔安娜·布里格斯研究所.
- 一个全面的搜索策略将涵盖多个文献数据库 (Embase,Medline,PsychINFO等). 和灰色文学.
- 两个审稿人将独立选标题,摘要和全文,然后对所包含的研究进行批判性评估.
主要成果:
- 将使用数据图表和映射来综合发现.
- 该审查旨在提供有关ME/CFS社区互联网使用的深入知识.
- 具体的结果将在数据分析阶段之后出现.
结论:
- 本范围审查协议概述了一种严格的方法来探索ME/CFS患者生活的关键方面.
- 调查结果将为ME/CFS慈善机构提供信息,并为同行评审的文献做出贡献.
- 这项研究将增强对这一患者群体数字健康参与的理解.
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