对成年囊性纤维化患者的远程医疗运动干预措施的偏好和观点:一种定性研究
Megan Poulsen1,2, Anne E Holland3,4, Brenda Button1,2,5
1Department of Physiotherapy, Alfred Health, Melbourne, Victoria, Australia.
Pediatric pulmonology
|January 30, 2024
概括
囊性纤维化 (CF) 的远程医疗炼计划应该是个性化的,促进与同龄人和护理团队的联系,并包括进度监测. 这些发现提高了CF患者的运动可访问性和坚持性.
科学领域:
- 心血管和呼吸系统生理学
- 康复医学 康复医学 康复医学
- 数字健康干预措施 数字健康干预措施
背景情况:
- 身体活动对于治疗囊性纤维化 (CF) 是至关重要的.
- 在线炼计划提供了一种解决方案,以尽量减少交叉感染风险,并改善CF患者的获取.
- 了解患者的观点对于开发有效的远程医疗干预至关重要.
研究的目的:
- 探索CF成年人对远程健康炼计划内容的看法.
- 确定CF管理中成功的在线练习干预的关键要素.
主要方法:
- 使用半结构面试对23名患有CF的成年人进行定性研究.
- 参与者根据年龄,疾病严重程度和人口统计数据进行了选择.
- 两位独立研究人员进行了主题分析.
主要成果:
- 出现了三个主要主题:运动计划的个性化,社会联系的重要性以及健康/运动监测.
- 个性化包括根据个人需求量身定制,确保享受和多样性,并适应生活方式的需求.
- 保持联系涉及面对面互动,问责制,共享经验和专家支持的挑战.
- 监测侧重于感知健康状况和跟踪运动参与.
结论:
- 对于CF的远程医疗运动干预应该是个性化的.
- 结合同行和多学科团队的联系是必不可少的.
- 监测健康和运动进度的方法对于坚持和有效性是必要的.
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