患者的信息需求和外展偏好:在患有肝胆恶性瘤的患者中进行一项横截面调查研究
Sean M Stokes1, Mintallah Haider1, Susan T Vadaparampil2
1Department of GI Oncology, H. Lee Moffitt Cancer Center and Research Institute, 12902 Magnolia Drive, Tampa, FL 33612, United States.
PEC innovation
|January 31, 2024
概括
肝胆道癌症患者希望获得更多的教育,更喜欢在线资源获取癌症治疗信息. 需要改善关于多学科瘤委员会建议的沟通.
科学领域:
- 在瘤学瘤学.
- 患者教育 患者教育
- 医疗保健服务研究 医疗服务研究
背景情况:
- 肝胆道瘤需要不断发展的管理策略.
- 患者对复杂的护理和教育需求的理解仍然不清楚.
- 对肝胆癌患者的社区参与偏好尚未明确.
研究的目的:
- 评估肝胆癌患者的教育需求.
- 确定患者对社区外展和参与的兴趣.
- 确定患者教育和沟通的首选方法.
主要方法:
- 从2016年至2019年进行了前性需求评估调查研究.
- 调查分发给169名肝胆病患者,涵盖信息需求,外展兴趣和参与偏好.
- 70名患者完成了调查,反应率为41.4%.
主要成果:
- 主要关注的是癌症治疗 (55.7%),其次是症状管理,营养和生存率.
- 大多数患者 (81.4%) 没有参与查,但希望获得更多信息.
- 患者更喜欢在线教育方法 (70%) 并表示需要更好地沟通瘤委员会建议 (54.3%觉得知情很好).
结论:
- 肝胆道癌症患者对教育资源,特别是在线教育资源有很大的兴趣.
- 有效的多学科护理患者导航需要增强的沟通策略.
- 研究结果支持开发创新的,以患者为中心的外展计划.
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