在英国为儿科风湿病学确定研究重点
Eve M D Smith1, Naomi Egbivwie1, Katherine Cowan2
1Department of Women's & Children's Health, Institute of Life Course and Medical Sciences, University of Liverpool, UK; Department of Paediatric Rheumatology, Alder Hey Children's NHS Foundation Trust Hospital, Liverpool, UK.
The Lancet. Rheumatology
|January 31, 2024
概括
儿童类类风湿性疾病的研究重点是通过涉及医疗保健专业人员和患者的共识过程确定的. 这旨在解决缺乏证据的问题,并为未满足患者需求的未来研究资金提供指导.
科学领域:
- 儿科风湿病学 儿科风湿病学
- 卫生政策 卫生政策
- 临床研究 临床研究
背景情况:
- 儿童类类风湿性疾病的管理存在证据基础不足的问题.
- 在这个领域,许多关键问题仍然没有得到答案.
研究的目的:
- 引起和优先考虑儿童类类风湿性疾病的研究需求.
- 引导临床医生,学者和资助机构优先考虑研究工作.
主要方法:
- 采用了经过修改的Delphi流程,包括在线调查和共识研讨会.
- 从儿科风湿病学家,相关卫生专业人员,患者和护理人员收集了输入.
- 最初编制了55个疾病特异性和37个一般性研究重点的长清单.
主要成果:
- 建立了11个主要的一般研究优先事项列表.
- 通过在研讨会上进行深入讨论,最终确定了十大特定疾病的研究重点.
结论:
- 这项研究确定了关键的研究重点,以解决儿科类类风湿性疾病的未满足需求.
- 这些发现将为该领域的研究和资金的战略规划提供信息.
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