在Facebook上征求无私的脏捐赠
1Department of Communication, Johannes Gutenberg University Mainz, Mainz, Jakob-Welder-Weg 12 55128, Germany.
Social science & medicine (1982)
|January 31, 2024
概括
患有慢性功能衰竭的患者在社交媒体上求捐款. 这项研究分析了Facebook的请求,揭示了脏捐赠的内在冲突和理由,突出了获得拯救生命的资源的独特方法.
科学领域:
- 医学社会学 医学社会学
- 数字健康数字健康
- 移植的伦理 移植的伦理
背景情况:
- 慢性功能衰竭需要替代疗法或移植.
- 移植是优越的,但由于缺乏捐赠者,它面临着可访问性问题.
- 以色列在利他主义活体捐赠者的脏捐赠方面处于领先地位,改变了捐赠范式.
研究的目的:
- 为了检查患有功能衰竭的患者对数字征求的现象.
- 了解在线脏上诉中的社会动态和个人叙述.
- 探讨对资源分配的社会健康辩论的影响.
主要方法:
- 对76次数字脏征求尝试进行主题分析.
- 从Facebook帖子中收集的数据.
- 定性研究方法.
主要成果:
- 数字脏征求涉及表达关于要求脏的行为内部冲突.
- 征求书包括对脏捐赠的一般理由以及个人征求书的具体理由.
- 患者在社交媒体上积极参与自我倡导,以获得拯救生命的治疗.
结论:
- 数字社交网络已经成为患者积极寻求脏捐赠的平台.
- 这种做法揭示了围绕器官捐献的复杂的个人和社会谈判.
- 这种现象促使人们对公平的医疗资源分配和患者权力进行批判性讨论.
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