在一个大型学术机构的研究实践中实现公平,包容和获取
Emma Britez Ferrante1, Shira Blady1, Dorothy Sheu1
1Palliative and Advanced Illness Research (PAIR) Center at the University of Pennsylvania, Philadelphia, PA, USA.
Journal of general internal medicine
|February 1, 2024
概括
新的指导方针通过解决参与者补偿,语言访问和清晰沟通来促进公平的研究. 这些做法提高了科学研究中的包容性和数据完整性.
科学领域:
- 卫生研究 卫生研究 卫生研究
- 临床试验 临床试验
- 研究伦理学研究伦理学
背景情况:
- 研究进展受到参与者代表性不足和数据不准确性所限制.
- 缺乏指导方针阻碍了公平的研究实践.
- 解决这些差距对于科学进步至关重要.
研究的目的:
- 为包容和公平的研究行为制定和传播指南.
- 提高研究数据的质量和代表性.
- 在科学事业中促进正义和公平.
主要方法:
- 采用了多方面的方法,包括文献评论和专家反.
- 由两个研究中心的教师和工作人员制定了指导方针.
- 合作和相互学习是开发过程的关键组成部分.
主要成果:
- 为参与者支付,语言服务,普通语言,材料可读性和包容性术语制定了指导方针.
- 主要建议包括提供现金支付,提供口译服务,将语言简化到六年级到八年级的水平,改进文本格式以及使用人性化的语言.
- 这些指导方针旨在提高参与者参与度和数据准确性.
结论:
- 多样性,包容性和获取是公平研究的基础.
- 组织的承诺和组织间的伙伴关系对于实现这些价值观至关重要.
- 对不断变化的实践进行持续评估是保持相关性和准确性的必要.
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