通过民族学和以艺术为基础的方法论,探索父亲照顾有复杂护理需求的孩子的经验
Roberta L Woodgate1, Miriam Gonzalez2, Jacquie D Ripat3
1College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, 89 Curry Place, Winnipeg, MB, R3T 2N2, Canada. Roberta.Woodgate@umanitoba.ca.
BMC pediatrics
|February 2, 2024
概括
父亲积极支持有复杂护理需求 (CCN) 的孩子,通过适应环境和参与护理. 建议侧重于家长的支持,提供者的真实沟通以及CCN家庭的政策变化.
科学领域:
- 儿科 儿科 儿科
- 家庭研究 家庭研究
- 社会学 社会学 社会学
背景情况:
- 全球患有复杂护理需求 (CCN) 的儿童患病率不断增加.
- 对父亲照顾CCN儿童的经验进行的研究有限.
- 研究考察了加拿大家庭的社会参与.
研究的目的:
- 探索父亲照顾CCN儿童的经验.
- 为了确定父亲对孩子的照顾和社会参与的贡献.
- 为家长,服务提供者和政策制定者提出建议.
主要方法:
- 定性民族学和以艺术为基础的方法 (ecomaps,photovoice).
- 有目的和雪球采样.
- 采访29位父亲 (28-55岁) 和4位家长顾问.
- 代数据分析涉及主题改进.
主要成果:
- 总体主题:父亲努力为他们的孩子提供CCN.
- 支持主题:为家长团队做出贡献,建立可访问性,参与活动,表达自豪感和创造意义.
- 建议:培养联系,寻求帮助 (家长);真实沟通,倾听 (提供者);优先考虑领导和资金 (政策制定者).
结论:
- 父亲积极参与照顾和发展,增强孩子在日常生活中的参与.
- 确定政策重点:可访问的物理环境.
- 突出需要与父亲合作的护理团队和成人医疗保健中的复杂护理团队.
- 指出了对心理社会支持和未来研究领域 (多样性,交叉性) 的影响.
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