评估多发性硬化症患者的复发知识:关于开发和验证复发知识问卷的横截面研究
Lisa Wenzel1, Michel Haker2, Christoph Heesen3
1Institute of Nursing Science, University of Cologne, Medical Faculty & University Hospital Cologne, Cologne, Germany; Institute of Neuroimmunology and Multiple Sclerosis (INIMS), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Multiple sclerosis and related disorders
|February 3, 2024
概括
一个新的问卷,MS复发知识问卷 (RKQ),已经开发和验证. 这个工具评估了患者对多发性硬化症 (MS) 复发的知识,帮助教育干预.
科学领域:
- 神经学 神经学
- 医学教育 医学教育
- 健康心理学 心理健康心理学
背景情况:
- 患者的知识对于在多发性硬化症 (MS) 管理中做出明智决策至关重要.
- 在MS中复发治疗涉及不确定性,需要积极的患者参与.
- 目前,没有有效的工具可以测量MS患者的复发知识.
研究的目的:
- 开发和验证可靠的问卷以评估对多发性硬化症复发的知识.
- 创建一个适合评估MS患者教育干预措施的结果工具.
主要方法:
- 一个多学科小组开发了复发知识问卷 (RKQ).
- 定性思考大声采访评估了可理解性,可用性和接受性.
- 与复发性复发性多发性硬化症患者进行的一项横截面在线调查 (n=203) 验证了RKQ的心理特征.
主要成果:
- 最后的10项RKQ证明了可用性和接受性.
- 验证研究 (n=203) 显示了令人满意的构造有效性.
- 超过50%的参与者错误地回答了7个问题,这表明了教育重点的领域.
结论:
- 复发知识问卷 (RKQ) 是一个有效的工具.
- 在教育干预研究中,RKQ被提出为评估MS复发知识的合适工具.
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