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Updated: Jul 4, 2025

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不同的患者与提供者对生活在库辛病的不同看法

Amanda Halstrom1, I-Hsin Lin2, Andrew Lin3,4,5

  • 1Division of Endocrinology, Department of Medicine, Weill Cornell Medicine, New York, NY, USA.

Pituitary
|February 5, 2024
PubMed
概括

库辛病患者比医疗保健提供者认为的更少有希望,更孤独. 解决患者对教育和生活质量的需求对于改善库辛病治疗结果至关重要.

关键词:
库希斯的 库希斯的患者报告的结果.下垂体 - - 下垂体生活质量生活的质量.罕见疾病是一种罕见的疾病.虚拟教育是虚拟的教育.

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