基于区块链的动态同意及其用于以患者为中心的研究和健康信息共享的应用:综合性审查协议
Wendy M Charles1,2, Mark B van der Waal3,4, Joost Flach3
1Health Administration Program, Business School, University of Colorado, Denver, Denver, CO, United States.
JMIR research protocols
|February 5, 2024
概括
本审查协议概述了在健康研究中基于区块链的动态同意的批判性评估. 它旨在建立以患者为中心的数据共享和伦理研究的最佳实践.
科学领域:
- 医疗信息学 医疗信息学
- 区块链技术 区块链技术
- 研究伦理学研究伦理学
背景情况:
- 区块链为以患者为中心的健康研究和信息共享提供了潜力.
- 通过区块链实现的动态知情同意,允许患者持续监督数据使用情况.
- 目前在卫生研究中基于区块链的动态同意的实施需要进行批判性评估.
研究的目的:
- 为指导在健康研究中识别和批判性评估基于区块链的动态同意实施.
- 促进未来研究,创新和实施的最佳实践的发展.
主要方法:
- 一个基于PRISMA-P框架的综合性审查协议.
- 在多个学术和灰色文学数据库中进行全面的文献搜索.
- 独立的数据提取和由多个审查员进行裁决,使用混合方法评估工具和主题综合进行质量评估.
主要成果:
- 最初的搜索发现了492篇文章,其中180篇被选为全文审查,证实了足够的文献可行性.
- 该审查将对基于区块链的动态同意的有效性,效率,满意度和监管合规性的证据进行综合.
- 还将分析基于区块链的同意系统中身份管理的方法.
结论:
- 该审查将全面概述医疗研究中新兴的基于区块链的动态同意技术.
- 洞察力将告知最佳实践,以加强以患者为中心的研究和健康信息共享.
- 这项工作支持道德和合规的纵向研究和患者参与.
关键词:
最佳实践的最佳实践是什么区块链区块链区块链区块链区块链临床试验临床试验临床试验临床试验临床试验数据重复使用.分享数据的数据共享.动态同意 动态同意医疗保健数据 医疗保健数据综合性研究审查综合性研究审查科学严谨的科学严谨性技术实施技术实施技术更多相关视频
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