在重度精神疾病患者中接受或拒绝在线记录访问的原因:混合方法研究
Julian Schwarz1,2,3, Eva Meier-Diedrich1,3, Katharina Neumann1
1Department of Psychiatry and Psychotherapy, Center for Mental Health, Immanuel Hospital Rüdersdorf, Brandenburg Medical School Theodor Fontane, Rüdersdorf, Germany.
JMIR mental health
|February 5, 2024
概括
许多患有严重精神疾病 (SMI) 的患者希望在线访问他们的健康记录,但由于信任或痛苦问题,有些人会拒绝. 需要教育来鼓励ORA的采用.
科学领域:
- 心理健康研究 心理健康研究
- 医疗信息学 医疗信息学
- 患者赋权是患者赋权的一种方式.
背景情况:
- 在线记录访问 (ORA) 允许患者查看健康数据,包括临床笔记.
- ORA很少被提供给患有严重精神疾病 (SMI) 的患者.
- 我们对SMI患者使用或拒绝ORA的动机知之甚少.
研究的目的:
- 探索为什么SMI患者考虑或拒绝ORA的原因.
- 调查社会人口统计学特征是否影响ORA决策.
主要方法:
- 在德国3所大学门诊所的随机选择的SMI患者被提供ORA.
- 对接受或拒绝ORA的参与者进行了定性采访.
- 采访的专题分析和社会人口统计数据的描述性统计数据被使用.
主要成果:
- 58%的患者选择阅读他们的临床笔记,并引用了积极的治疗参与和监测.
- 42%的人因担心临床医生的信任,个人困境或数字素养等实际障碍而拒绝了ORA.
- 患有抑郁症的患者更可能渴望ORA,而患有精神病的患者更可能拒绝.
结论:
- ORA采用受到各种动机和担忧的影响.
- 对ORA的实用性,好处和隐私的患者教育至关重要.
- 进一步的研究应侧重于为SMI患者准备ORA参与.
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