关于联合制作的思考:与多样化的生活经验小组一起开发痴呆症研究资助申请
Sarah Griffiths1, Martin Robertson2, Chandrika Kaviraj2
1Department of Primary Care and Population Health, University College London, UK.
与不同生活经验群体共同制作痴呆症研究资助申请,提高了包容性. 获得的关键教训包括促进平等,多样性和包容 (EDI) 讨论和简化薪酬.
科学领域:
- 老年学是一门学科.
- 公共卫生 公共卫生
- 医疗保健服务研究 医疗服务研究
背景情况:
- 已发表的关于痴呆症联合生产的研究主要涉及干预开发,仅限于资金申请流程.
- 英国公众参与研究往往缺乏多样性,主要包括白人,中产阶级的贡献者,阻碍了解决健康不平等问题的努力.
- 共同制作研究资助申请需要实用策略,以确保不同人群的有意义参与.
研究的目的:
- 举一个文化多元化的生活经验小组共同制作痴呆症研究资助申请的例子.
- 探索各种公共贡献者参与痴呆症研究资助的实用性和经验.
- 确定关于多样性,包容性和联合制作过程的经验教训.
主要方法:
- 形成了一个文化多元化的生活经验小组,包括痴呆症患者,照顾者和前照顾者.
- 进行了虚拟小组会议,利用参与者的独特经验和专业知识.
- 关于多样性和包容性的反思以共同制作的问题为指导,并系统地记录.
主要成果:
- 组成员报告说,在整个联合制作过程中,他们感到有权力,被听到和平等.
- 值得重视的方面包括小组的多样性,相互学习和共同领导者的民主参与.
- 他们指出了一些挑战,特别是促进围绕平等,多样性和包容 (EDI) 的讨论.
结论:
- 有效促进EDI讨论对于包容性联合制作至关重要.
- 充分资助参与者的时间,旅行和可访问的报酬流程对于成功的公众参与至关重要.
- 分享实际经验教训可以改善痴呆症研究资助申请的联合制作.
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