更轻松的触摸:对患有罕见遗传神经发育疾病的儿童进行顺序实施的行为睡眠干预措施的限制较小
Emma C Woodford1, Laurie K McLay2,3, Karyn G France2
1Faculty of Health, Te Kaupeka Oranga, University of Canterbury, Christchurch, New Zealand. emma.woodford@pg.canterbury.ac.nz.
Journal of autism and developmental disorders
|February 7, 2024
概括
行为睡眠干预有效地治疗患有罕见遗传神经发育疾病 (RGNC) 的儿童的睡眠困难. 较少的限制性策略往往是足够的,应该优先考虑在更密集的方法之前.
科学领域:
- 儿科睡眠医学 儿科睡眠医学
- 神经发育障碍 神经发育障碍
- 行为干预行为干预
背景情况:
- 睡眠困难在患有罕见遗传神经发育疾病 (RGNC) 的儿童中很普遍.
- 行为干预在神经发育状况中很常见,但在RGNC中研究不足.
- 需要进行研究,以确定对这一群体的有效和最少限制性干预措施.
研究的目的:
- 调查RGNC儿童行为睡眠干预措施的有效性和可接受性.
- 为了确定行为睡眠干预的最小足够的组件.
- 在干预顺序中应用最少限制的原则.
主要方法:
- 采用了单个案例多重基线设计.
- 八名患有RGNC的儿童 (平均年龄7.3岁) 参加了这项研究.
- 干预组件根据较少限制的原则顺序管理.
主要成果:
- 在睡眠开始延迟 (7/7名儿童),夜间醒来 (6/7名儿童) 和清晨醒来/不必要的床上共享 (3/3名儿童) 中观察到显著改善.
- 大多数改善发生在不那么严格的干预阶段 (心律,先验,积极强化).
- 五名参与者需要修改灭绝程序;在随访时保持了改善,干预措施是家长可以接受的.
结论:
- 基于功能的,不那么严格的行为策略对于治疗RGNC儿童的睡眠困难是有效的.
- 这些策略可能是足够的,应该在更具限制性的方法之前实施.
- 优先考虑不那么严格的干预措施可以确保有效性和家长的接受度.
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