在衡量加拿大范围的儿童残疾网络中患者参与度的经验教训
Tatiana Ogourtsova1,2,3, Miriam Gonzalez4, Alix Zerbo5
1Faculty of Medicine and Health Sciences, School of Physical and Occupational Therapy, McGill University, Montreal, QC, Canada. tatiana.ogourtsova@mcgill.ca.
Research involvement and engagement
|February 7, 2024
概括
这项研究表明,患者参与儿童残疾研究的持续高满意度,伴随着合作伙伴之间的舒适性和信任度的提高. 结果为加强以患者为导向的研究合作努力提供了见解.
科学领域:
- 以患者为导向的研究.
- 儿童残疾研究儿童残疾研究
- 医疗服务研究 医疗服务研究
背景情况:
- 儿童明亮网络专注于以患者为导向的儿童残疾研究.
- 持续改进利益相关者参与和伙伴关系影响是一个关键目标.
- 衡量患者参与度对于评估和增强研究实践至关重要.
研究的目的:
- 为了纵向测量患者参与度超过三年.
- 探索感知到的好处,障碍,促进者,以及对患者参与的满意度.
- 收集来自不同利益相关者的观点,包括患者合作伙伴,研究人员和临床医生.
主要方法:
- 使用社区参与型研究 (CBPR) 问卷 (2018-2020) 的纵向在线调查.
- 在第三年使用公众和患者参与评估工具 (PPEET) 进行横截面混合方法研究.
- 数据分析涉及描述性统计和主题方法.
主要成果:
- 在三年内报告的患者参与度高且稳定的满意度 (94%的真实伙伴关系).
- 在患者合作伙伴和研究人员之间观察到,分享观点的舒适度提高,批判性反射信任增加.
- 患者参与因素和影响得到了高度评价;定性数据确定了优势,障碍和促进者.
结论:
- 一项为期三年的评估证实了对CHILD-BRIGHT网络患者参与度的持续高满意度.
- 舒适度和信任度的提高凸显了网络致力于加强参与的承诺.
- 研究结果为优化儿童残疾协作研究努力提供了宝贵的见解.
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