在儿科炎症性肠病中进行的前性多站点受控试验
Alycia Leiby1,2, Lindsey Albenberg3, Annette Langseder1
1Division of Pediatric Gastroenterology and Nutrition, Atlantic Children's Health-Goryeb Children's Hospital, Atlantic Health System, Morristown, New Jersey, USA.
Journal of pediatric gastroenterology and nutrition
|February 8, 2024
概括
结构化的课程显著改善了儿童炎症性肠病 (IBD) 患者的健康相关生活质量和自我效能. 这些好处在干预后三个月持续存在,这表明的好处持续了三个月.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 综合医学是一个整体的医学.
- 生活质量研究 研究 生命质量研究
背景情况:
- 炎症性肠病 (IBD) 显著影响儿科患者的生活质量 (QOL) 和自我效能.
- 目前的管理往往侧重于医疗疗法,对整体福祉的补充干预措施的探索有限.
研究的目的:
- 评估结构化课程在改善儿科IBD患者健康相关生活质量 (HRQOL) 和自我效能方面的有效性.
- 评估对这一群体的益处的可持续性.
主要方法:
- 一个为期12周的个人干预与被诊断患有IBD的儿科患者 (年龄10-17岁) 进行.
- 包括HRQOL (IMPACT-III,PedsQL) 和自我有效性 (GSE) 在内的结果在基线,干预后和3个月后跟踪测量.
- 还记录了患者报告的压力管理和长期练习的坚持.
主要成果:
- 从基线到3个月的随访期间,IMPACT-III,PedsQL和GSE得分有显著改善 (p <0.05).
- 85.2%的参与者报告说,有助于压力管理.
- 显著的百分比 (31.9%) 在干预后1-3年继续练习.
结论:
- 一个为期12周的结构化计划有效地改善了儿科IBD患者的HRQOL和自我效能.
- 观察到的持续益处表明,是标准医疗护理的宝贵补充,可以改善IBD年轻人的QOL和自我效能.
- 证明了安全性和有效性,作为这种人群的补充疗法.
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