"沟通很困难":年轻发病或较罕见的非语言导致痴呆症患者的言语,语言和沟通需求
Anna Volkmer1, Lisa Cross1,2, Lily Highton1,3
1Psychology and Language Sciences, University College London, London, UK.
International journal of language & communication disorders
|February 8, 2024
概括
患有非语言导致痴呆症的人经历了重大沟通挑战,影响了社交生活和情绪. 需要进行语音和语言治疗干预来解决这些未满足的需求.
科学领域:
- 神经退行性疾病的神经退行性疾病
- 语音和语言病理学
- 定性研究是一种定性研究.
背景情况:
- 患有行为变异前性痴呆症,莱维体痴呆症,后皮层缩症和年轻发病阿尔茨海默病的人经常面临沟通障碍.
- 尽管存在这些挑战,但对于这些非语言驱动性痴呆症的言语和语言干预仍然缺乏研究.
研究的目的:
- 调查特定非语言驱动性痴呆症患者及其家属关于沟通困难的经历.
- 探索语音和语言治疗如何解决这些已识别的沟通需求的观点.
主要方法:
- 采用了定性研究设计,涉及焦点小组和采访受行为变异前性痴呆症,勒维体痴呆症,后皮层缩或年轻发病阿尔茨海默病影响的个体.
- 从25名参与者收集数据,并使用反射主题分析进行分析.
主要成果:
- 沟通困难被确定为主要问题,导致失去和孤独的感觉.
- 关键主题包括沟通挑战的普遍性质,情感影响,语音和语言治疗的感知作用以及护理人员的关键参与.
- 16个子主题进一步详细介绍了不同类型痴呆症的具体问题.
结论:
- 在非语言导致的痴呆症中,言语,语言和沟通困难很普遍,严重影响社会参与和心理健康.
- 参与者表达了对言语和语言干预的强烈愿望,即使是在疾病的早期阶段.
- 发展和研究与非语言驱动性痴呆症患者及其护理伙伴合作的定制语音和语言干预措施至关重要.
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