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患有心肌缺血和没有阻塞性冠状动脉的生活:一种定性研究

Helen Humphreys¹, Danielle Paddock², Sarah Brown^3,4

¹Centre for Behavioural Science and Applied Psychology, Sheffield Hallam University, Sheffield, UK h.humphreys@shu.ac.uk.

|February 8, 2024

概括

患有心肌缺血不阻塞动脉 (INOCA) 的患者面临重大挑战,影响日常生活和精神健康. 改善诊断,治疗和支持对于INOCA患者至关重要.

科学领域:

心脏病学和心血管健康
患者体验和定性研究
慢性疾病对心理的影响.

背景情况:

没有阻塞性动脉的心肌缺血 (INOCA) 影响了大量患者群体.
了解INOCA的实践经验对于改善患者护理至关重要.
以前的研究集中在诊断和治疗途径上,不太重视患者报告的结果.

研究的目的:

为了探索被诊断为心肌缺血而没有阻塞性动脉的个人的生活经验.
确定患者在整个诊断和治疗过程中所面临的挑战.
了解INOCA对日常生活的心理和社会影响.

主要方法:

使用半结构化的电话采访进行的定性研究.
17名参与者 (15名女性,2名男性;年龄31-69岁) 与INOCA,通过在线患者论坛招募.
对面试数据进行主题分析,以确定关键经验和主题.

主要成果:

五个主要主题出现了:症状变化和相关的恐惧/不确定性;对社会生活,就业和日常活动的重大影响;具有挑战性的诊断和支持途径;治疗和管理缺乏清晰度;以及有效的应对/支持策略.
参与者报告了广泛的症状体验,从轻度到重度.
诊断和治疗途径经常被描述为创伤性和缺乏共识.

结论:

与INOCA生活带来了相当大的心理和社会挑战.
对于INOCA来说,急需提高诊断清晰度,一致的治疗方法和改进的患者支持系统.
这些发现强调了以患者为中心的护理在管理INOCA的重要性.

关键词:

冠状动脉疾病冠状动脉疾病卫生服务卫生服务卫生服务微血管性心血管炎 (microvascular angina) 是一个非常小的疾病.

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