一个更公平,多样化和包容性的框架 患者和公众参与息护理研究
Sarah Mitchell1, Nicola Turner2, Kate Fryer3
1Division of Primary Care, Palliative Care and Public Health, Leeds Institute of Health Sciences, University of Leeds, Clarendon Road, Leeds, UK. S.Mitchell2@Leeds.ac.uk.
Research involvement and engagement
|February 8, 2024
概括
通过包容性患者和公众参与 (PPI) 战略,可以解决息护理方面的不平等问题. 一个初级保健和息保健伙伴关系开发了新的资源和一个框架,以加强多样性和包容性研究,改善对所有晚期疾病患者的护理.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 公共卫生 公共卫生
- 抚慰性护理是一种缓解性护理.
背景情况:
- 在获得和提供息护理方面存在重大差异.
- 解决这些不平等问题需要理解和实施包容性研究实践.
- 患者与公众参与 (PPI) 对于指导为不同人群服务的研究至关重要,特别是那些缺乏专业服务的人群.
研究的目的:
- 在初级保健和专业息护理之间建立合作研究伙伴关系.
- 在息治疗研究中为更具包容性的PPI创造机会.
- 在息治疗中共同设计资源和一个公平,多样化和包容性的PPI框架.
主要方法:
- 通过初级和息护理研究网络,从英国不同地区招募了16名PPI成员.
- 使用实用,协作方法与在线研讨会来识别障碍和共同设计资源.
- 采用包括影响日志和简短调查在内的评估方法,以最佳实践和公平理论为基础.
主要成果:
- 共同设计的资源,如一个公平,平等,多样性和包容性冠军角色描述,一个"jargon buster",一个动画和一个在线食谱书.
- 通过协调研究小组沟通,促进了对包容性PPI障碍的公开讨论.
- 基于伙伴关系的学习,在未来的息护理研究中制定了包容性PPI的新框架.
结论:
- 初级护理和息护理之间的多学科合作促进了创新的方法和资源的发展.
- 在PPI中提高平等,多样性和包容性的关键要素包括研究团队的承诺,共同的愿景,充足的资源,规划,关系建设和评估.
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