开发患者旅程地图,以改善患者体验和阿托匹克皮肤炎护理质量
Gastón Roustán1, Marta Loro2, Ángel Rosell2
1Department of Dermatology, Puerta de Hierro Majadahonda University (HUPHM) Hospital, Madrid, Spain. groustan@gmail.com.
Dermatology and therapy
|February 9, 2024
概括
亚托邦性皮肤炎 (AD) 显著影响患者的患者.
科学领域:
- 皮肤病学 皮肤病学
- 患者体验 患者体验
- 医疗保健的质量 医疗保健的质量
背景情况:
- 亚托皮炎 (AD) 是一种慢性炎症性皮肤疾病,影响儿童和成人.
- 阿尔茨海默病与喘,过敏性鼻炎和食物过敏等并发症有关.
- 患者面临的挑战包括,治疗效率低下,诊断/治疗寻求困难等.
研究的目的:
- 识别障碍和机会,以改善患者在AD护理中的体验.
- 加强对阿托皮性皮肤炎患者提供高质量的护理.
主要方法:
- 涉及患者,护理人员和医疗保健专业人员的定性研究.
- 采访和故事板会议进行,以创建一个病人旅程地图.
- 在Puerta de Hierro Majadahonda大学医院的皮肤病学部门招聘.
主要成果:
- 早期的阿尔茨海默病症状往往是不确定的,导致患者和护理人员的不确定性和丧.
- 治疗的无效,特别是局部皮质类固醇,造成了严重的痛苦.
- 专业治疗改善了情绪状态;心理支持至关重要,正如患者学校倡议所示.
结论:
- 阿尔茨海默病的严重程度深刻影响患者的生活.
- 通过沟通,有效的治疗和心理支持来解决情感和社会需求至关重要.
- 改善患者在阿尔茨海默病护理中的旅程需要全面的方法.
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