患者和公众参与堕胎研究:从塑造堕胎为变革 (SACHA) 研究的反思
Rebecca Blaylock1,2, Maria Lewandowska2, Charlotte Kelly3
1Centre for Reproductive Research & Communication, British Pregnancy Advisory Service, London, UK rebecca.blaylock1@lshtm.ac.uk.
BMJ sexual & reproductive health
|February 9, 2024
概括
患者和公众参与 (PPI) 堕胎研究是可行的和有益的. 让患者参与研究,特别是通过小组讨论,有助于消除堕胎的耻辱化,并为改善堕胎护理提供了宝贵的见解.
科学领域:
- 社会科学 社会科学 社会科学
- 公共卫生 公共卫生
- 医学伦理 医学伦理
背景情况:
- 患者和公众参与 (PPI) 在与堕胎相关的研究中未得到充分利用,原因是对耻辱感,保密性和有限资金等结构性障碍的担忧.
- 这些挑战往往阻碍了PPI有意义的机会,影响了基于证据的堕胎护理的发展.
研究的目的:
- 描述在塑造堕胎为变革 (SACHA) 研究中实施PPI所吸取的经验教训.
- 探索创建证据基础的方法,通过PPI指导英国堕胎护理的新方向.
主要方法:
- 采用了两种PPI方法:为研究监督和传播提供非专业顾问,以及为患者提供有关研究结果和建议的意见的小组会议.
- 将患者的优先事项与通过专家利益相关者商确定的优先事项进行了比较.
主要成果:
- PPI参与者证实SACHA研究的结果与他们在英国的个人堕胎经历一致.
- 患者的优先事项与专家利益相关者的发现密切相匹配,PPI确定了一个额外的关键优先事项.
- 堕胎患者表现出高度的参与动机,团体参与有助于通过提供共享经验的空间来消除堕胎的耻辱化.
结论:
- 让堕胎患者参与研究是可行的,并且在道德上是可以管理的,这可能会减轻人们对痛苦的担忧.
- PPI积极为消除堕胎的污名化做出贡献,并为改善服务提供有价值的见解.
- 来自SACHA研究的反思为研究人员在堕胎相关研究中考虑PPI提供了指导.
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